Welcome to Alexandra's House
Life is full of uncertainty with no guarantees. If the life expectancy of your unborn, newborn, or infant is limited, Alexandra’s House is here to help. Many services are provided directly through Alexandra’s House and others are coordinated through a variety of community resources. Residential care is available for those meeting specific criteria.
Alexandra’s House is a community based, all volunteer, peer-led perinatal hospice and infant care system for parents pregnant with babies with lethal or sub-lethal anomalies, for pregnancies that end unexpectedly at any point, from any cause, and for infants who die in the community, any cause. While its foundation is rooted in faith, its services offer a practical solution in meeting the time-intensive needs of families in these situations.
Alexandra’s House does not interfere with or substitute for any existing medical, social, or hospice agencies’ services. What it does is to help fill in the many gaps in care that do exist, as defined by those who have lived the experience of caring for a dying unborn or newborn baby. The ideal time to consult Alexandra’s House is at the time of diagnosis or loss: a) so parents are fully informed and b) to help alleviate some of the acute anxiety and very common feelings of isolation and abandonment. Alexandra’s House does not charge for its services nor does it accept contributions from people they serve.
Over 90% of our referrals come from the medical community – perinatologists, hospitals, doctor’s offices, sonographers, the community at large and through our website. We have followed families in America as far away as Alaska and have provided assistance in the UK, France, Germany, and New Zealand.
Services include: bringing meaning to suffering, assistance in grief resolution, parent-parent partnering, birth planning, funeral planning, long-term support, one to one and group meetings, pre-natal and post-natal housing, if required. If a baby survives and is dismissed from the hospital, the family and baby can stay here for the duration of their life. Professional nursing services are provided through a licensed hospice agency.
We were introduced to Alexandra's House when we lost our daughter, Kinley, unexpectedly in March 2010. My pregnancy was going well and I had reached 27 weeks. I woke up on a Monday morning and realized she had not woke me in the night by kicking me. She was very active, especially at night. I went to work and noticed little to no movement, so I called my doctor and they asked me to go to the hospital for monitoring.
My husband and I found out that I was pregnant on August 8, 2008. We were excited, although a bit reserved since I had suffered an early miscarriage three months prior. My OB was wonderful and basically held my hand in terms of doing what it took to calm my nerves. We hit the 12-week mark and decided to tell friends and family that we were expecting, thinking that we were out of the woods for anything to go wrong. We found out that we were having a daug
Story of a baby girl with Turner’s Syndrome.
I found out I was pregnant on Mothers Day, Sunday, May 10th, 2009. My husband and I were very happy and surprised that it happened so easily. A week later I went in to see the midwife – at that time I was only 5 or 6 weeks pregnant. Everything was fine.
I made a follow up appointment for a month later.