Welcome to Alexandra's House
Life is full of uncertainty with no guarantees. If the life expectancy of your unborn, newborn, or infant is limited, Alexandra’s House is here to help. Many services are provided directly through Alexandra’s House and others are coordinated through a variety of community resources. Residential care is available for those meeting specific criteria.
Alexandra’s House is a community based, all volunteer, peer-led perinatal hospice and infant care system for parents pregnant with babies with lethal or sub-lethal anomalies, for pregnancies that end unexpectedly at any point, from any cause, and for infants who die in the community, any cause. While its foundation is rooted in faith, its services offer a practical solution in meeting the time-intensive needs of families in these situations.
Alexandra’s House does not interfere with or substitute for any existing medical, social, or hospice agencies’ services. What it does is to help fill in the many gaps in care that do exist, as defined by those who have lived the experience of caring for a dying unborn or newborn baby. The ideal time to consult Alexandra’s House is at the time of diagnosis or loss: a) so parents are fully informed and b) to help alleviate some of the acute anxiety and very common feelings of isolation and abandonment. Alexandra’s House does not charge for its services nor does it accept contributions from people they serve.
Over 90% of our referrals come from the medical community – perinatologists, hospitals, doctor’s offices, sonographers, the community at large and through our website. We have followed families in America as far away as Alaska and have provided assistance in the UK, France, Germany, and New Zealand.
Services include: bringing meaning to suffering, assistance in grief resolution, parent-parent partnering, birth planning, funeral planning, long-term support, one to one and group meetings, pre-natal and post-natal housing, if required. If a baby survives and is dismissed from the hospital, the family and baby can stay here for the duration of their life. Professional nursing services are provided through a licensed hospice agency.
She never opened her eyes but I already knew her eyes sparkled like the night sky. Sophia, born an angel, that God already needed. Her life lasted only a few hours but changed by life forever. Only the best die young. Sophia deserved the life that she will never be able to experience but we will life through her. She made the biggest impact on my life even though she'll never know it.
It was a rainy day. I was at the hospital because my Baby sister was born her name was Sophia. I held her. She was light like a pillow. It was fun. I like it I miss Sophia
We talked to our kids this weekend, and they were so individual, heartbroken and sweet. Our daughter, Annie, said she thought God must have put four seeds inside of me when I was created and one was an angel seed. So I had three babies and now I would have the angel baby. That's the story I am going with from now on because it sounds just perfect to me. Our oldest, Leo, was the most emotional.
Joy and Joya were twins, very special twins. They were joined at the chest and shared one heart. After complex testing prenatally, it was determined that Joy and Joya could not be separated surgically. Neither would survive the surgery.
Ten fingers and ten toes - that's the first thing every parent checks on their newborn. For the parents of Alexandra's House those simple things are not taken for granted. I am Jeanette Burlbaw, a sonographer with 35 years of experience. Twenty of those have been in the perinatal departments here in Kansas City. I have been the sonographer who evaluated your baby prenatally and have been with you when you found out there was a compl